It makes me sad that pediatricians, neurologists, OT's and PT's who looked at her and worked with her never suggested an underlying health issue might be factor. No one ever mentioned there was a biomedical approach. Low muscle tone is benign--you are not going to die from it. And people consider dietary intervention too difficult. But low muscle tone is a classic symptom of celiac, which affects 1 in 100 people and people with gluten intolerance also get better from a
gluten free diet. Although the state payed for my daughters OT and PT, wouldn't she have been happier and felt more normal if she didn't have to go to the "gym" for four hours a week? I like to think I didn't really mind taking her to the gym, but truthfully, it was exhausting. And imagine how much more effective her gym would have been if she had also addressed the underlying cause of her low tone--she might have actually gotten some muscles.
It's weird to say, but I am grateful for her that her brother got so sick or we never would have investigated a gluten free diet and gotten to the bottom of her issues. Don't get me wrong she is still a handful and she still has other health issues. She is not perfect. And there are other things we are still dealing with. But how great is it that low muscle tone and sensory integration are not something I have to deal with AT ALL? She doesn't need to be taken out of the classroom to get OT and PT and she doesn't fall on the way to school anymore. She has muscles on her legs where there used to be just bones and fat and most important--she feels like a normal kid.